FAQs

What is lymphoedema?

Lymphoedema happens when a build up of lymph causes swelling in a part of the body. There are 2 types of lymphoedema.

  • Primary lymphoedema is a rare inherited condition in which the lymph nodes and lymph vessels are absent or abnormal.

  • Secondary lymphoedema can occur after treatment for cancer, when lymph nodes are removed during surgery or damaged by radiotherapy.

Lymphoedema usually develops gradually and can develop months or even years after your cancer treatment.

Am I at risk of lymphoedema?

Key risk factors for developing cancer related lymphoedema include:

  • having lymph nodes removed during surgery

  • having radiation therapy that scars the lymph nodes or vessels

  • having certain types of chemotherapy

  • being overweight

Studies suggest the incidence of developing lymphoedema in people with breast cancer following a sentinel node biopsy is 5% and following an axillary node dissection is 20%. In people with gynaecological cancer the incidence can be as high as 37%.

How do I know I have lymphoedema?

Signs you may be developing lymphoedema include;

  • Heavy and tight sensations - unusually full, heavy or difficult to move

  • Pitting - indentations left in your skin when you gently press in

  • Changes in fit - Clothing, jewelry, watches or shoes may suddenly feel tighter on your affected limb

If you notice signs of lymphoedema, schedule an appointment with your lymphoedema therapist to discuss suitable management.

Seek medical attention urgently if you feel unwell, and your limb becomes red, hot and painful to touch.

How do I manage lymphoedema?

Your lymphoedema therapist will work closely with you and your specialist healthcare team to develop an individualised treatment plan to help manage your lymphoedema.

Your plan may include manual lymphatic drainage (a specialised massage technique), compression therapy, exercise, and a tailored skin care routine.

Although lymphoedema may not be curable, it can be effectively managed, allowing most people to successfully manage their condition at home.

Who should I see to help me manage my lymphoedema?

Physiotherapists, Occupational Therapists or Registered Nurses who are Accredited Lymphoedema Therapists can help you to manage your lymphoedema. They will work with your specialist medical team to ensure you get the support you need.

Can I fly with lymphoedema?

Research has shown no significant link between flying and the development of lymphoedema.

People with confirmed lymphoedema should wear a compression garment during long flights. People who are at high risk should consider following suit.

Staying hydrated and moving regularly during the flight are effective ways to maintain circulation.